nathan james

04/03/08- Nathan's first seizure, CT scan revealed AVM doctors said AVM may never be cured

04/07/08- first embolization treatment

07/01/08- second embolization treatment

07/02/08- third embolization treatment (13 hour procedure)

07/03/08- recieved great news! there's only one connection left out of hundreds

09/22/08- Nathan passed his audiology test. Praise God!

10/23/08- Nathan's eyes were checked by a pediatric specialist and his eyes are healthy!

11/10/08- Admitted into VMC because of irritablility, diffiulty feeding and right eye deviation

11/11/08- Admitted into UCSF. Nathan has moderate hydrocephalus and they plan on inserting a shunt

11/13/08- Nathan's VP shunt surgery successful

11/17/08- New moderate bleed within the ventricles. Right eye deviation & right side weakness

11/19/08- New minimal bleed within the same area as previous bleed. 30 minute seizure. He is now very sleepy and hard to wake up

11/20/08- 10am Nathan was taken down to the neuro angiogram suite where he will be sedated and they will perform the angriogram/embolization

11/26/08- nathan's big day. scheduled craniotomy @ 8:30am

11/26/08- 8 hour surgery. Doctor's pleased with results. All AVMs visible were eliminated. Hallelujah!!

12/05/08- Emergency operation. They are going to place in an external shunt to relieve the pressure in his brain.

12/06/08- Nathan's intracranial pressure is getting worse..they think the external shunt might have been occluded.

12/06/08- Due to the rising pressures, Nathan will "not survive this"

12/07/08- Nathan's pressures started to decrease and stabilize

12/08/08- Nathan is no longer in imminent danger of dying. Prognosis is that he will remain in a "vegetative state"

12/09/08- Nathan is making new sounds. Little moans. We haven't heard a peep out of him in three weeks!

12/18/08- We will be discharged tomorrow! Nathan will be home for CHRISTMAS!! =)

12/19/08- we're home =)

12/25/08- Happy Birthday Jesus! Nathan's first christmas! and Nathan turns 11 months!

01/08/09- Nathan is scheduled for a follow up appointment with his neurologist Dr.Fullerton

01/11/09- Angels ushered our dear precious Nathan James at the break of dawn Sunday, January 11th to spend his first day in the loving arms of Jesus in heaven.

01/25/09- HAPPY 1ST BITHDAY NATHAN JAMES! WE LOVE YOU & MISS YOU BABY

Nathan James Avila Andaya

January 25th,2008-January 11th,2009

"With Hope" By Steven Curtis Chapman

This is not at all how

We thought it was supposed to be

We had so many plans for you

We had so many dreams

And now you've gone away

And left us with the memories of your smile

And nothing we can say

And nothing we can do

Can take away the pain

The pain of losing you, but ...

We can cry with hope

We can say goodbye with hope

'Cause we know our goodbye is not the end, oh no

And we can grieve with hope

'Cause we believe with hope

(There's a place by God's grace)

There's a place where we'll see your face again

We'll see your face again

And never have I known

Anything so hard to understand

And never have I questioned more

The wisdom of God's plan

But through the cloud of tears

I see the Father's smile and say well done

And I imagine you

Where you wanted most to be

Seeing all your dreams come true

'Cause now you're home

And now you're free, and ...

We have this hope as an anchor

'Cause we believe that everything

God promised us is true, so ...

We wait with hope

And we ache with hope

We hold on with hope

We let go with hope

1 Thess. 4:13-14 / Heb. 6:9, 10:23

MARK YOUR CALENDERS!

5th Annual Aneurysm and AVM awareness walk

Date:Saturday May 8th,2010

Location: Fort Mason's Great Meadow

Laguna St. at Marina Blvd. San Francisco,CA 94109

Event: 1 Mile or 5K Walk

Fee: Pre-registration is $20, Day of registration is $25

Goal: $2,500 (we raised $2,400 last year)

http://www.active.com/donate/TAAFwalk/babynathanj

*please feel free to e-mail me if you have any questions regarding how to join the walk or help fundraise for the walk.